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Meet Scleroderma Warriors

SCLERODERMA STORIES

Our Scleroderma Stories publication tells the journeys of scleroderma warriors around the world. In Scleroderma Stories, patients share their hardships, triumphs, passions, and more. This initiative seeks to help patients realize that they are not alone and that they can live incredibly rich lives, even with a chronic illness.

issue 1 front cover
Scleroderma Stories Issue 2 Cover
Scleroderma Stories Issue 3 Cover
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Explore Information

LEARN CENTER

Scleroderma United has developed its Learn Center as a hub for information about scleroderma, its symptoms, and related conditions. The Learn Center is intended as a resource to encourage and facilitate learning about scleroderma. 

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Share Your Experiences 

PATIENT-LED EDUCATION

Scleroderma United is launching a Patient-Led Education Program to facilitate the sharing of knowledge and resources within the scleroderma community. Projects in development include an online course for children with scleroderma as well as an accessibility tool resource bank. If you have scleroderma and are willing to share your experiences with any symptoms, treatments, accessibility tools, or anything that makes you think “I wish I knew that earlier,”  we would love your help!